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Cystic Fibrosis Foundation & Programs

Get Connected

Contact Us | Cystic Fibrosis Foundation
(301) 951-4422
800-FIGHT-CF (800) 344-4823
[email protected]

CF Peer Connect

CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. The resources below can help you learn more and get connected.

CF Peer Connect | Cystic Fibrosis Foundation
[email protected]

CF Foundation Compass

CF Foundation Compass is a service that helps people with CF and their families navigate insurance options, connect to legal information and experts, find available financial resources, and tackle other life issues.

Understanding Insurance | Cystic Fibrosis Foundation
844-COMPASS (1-844-266-7277)
[email protected]

Hours: Mondays – Thursdays at 9 AM – 7 PM EST | Fridays at 9 AM – 5 PM EST

Cystic Fibrosis Research Institute (CFRI)

In light of the high rates of depression and anxiety that are common among those impacted by cystic fibrosis (CF), CFRI offers financial support for counseling sessions as well as several monthly support groups for the CF community. These programs address the impact of chronic illness on emotional health. Participation in these programs helps improve health and quality of life. The resources below can help you learn more and get connected.

Psychosocial Support Programs & Classes – Cystic Fibrosis Research Institute
(650) 665-7576
[email protected]

American Diabetes Association

Adjusting to Life with Diabetes

Adjusting to Life with Diabetes handout that covers concerns about starting insulin for people with Type 2 Diabetes, mental illness and diabetes, distress caused by diabetes, fear of hypoglycemia, and support resources. Follow the link below to access this free resource.

ADA Mental Health Toolkit

Mental Health Provider Directory

The Mental Health Provider Directory makes it easy to find therapists who specialize in supporting individuals living with diabetes. Follow the link below to access this free resource.

Mental Health Directory – ADA

Health and Wellness

Health and Wellness resources to help those that are newly diagnosed, caring for someone with diabetes, a health care provider trying to help the people you see thrive, or someone seeking general knowledge about diabetes. Below is a link to access this free resource and a phone number to speak with a representative.

Health & Wellness | ADA
(800) DIABETES (324-2383)

Behavioral Diabetes Institute (BDI)

BDI along with colleagues in the field of diabetes health and mental wellbeing are continuously working on research projects to further improve the lives of people living with diabetes worldwide. The resources below can help you get connected to this non-profit organization.

Behavioral Diabetes
(858)-336-8693
[email protected]

Breakthrough T1D

Founded in 1970 by families whose loved ones had been diagnosed with type 1 diabetes (T1D), Breakthrough T1D is a tax-exempt nonprofit 501(c)(3) organization. The resources below can help you learn more and get connected.

Type 1 Diabetes – Breakthrough T1D
(800)-533-CURE (2873)
[email protected]

Federal Science and Nutrition

gov is powered by Federal Science and Nutrition and is a USDA-sponsored website that offers credible information to help you make healthful eating choices. Get information on food assistance programs for certain individuals and groups. Programs include SNAP, WIC, the National School Lunch Program and more.

Food Assistance Programs | Nutrition.gov

304-504-5414 (Food and Nutrition Information Center)

U.S. Centers for Disease Control and Prevention (CDC)

Food Assistance and Food System Resources

Several resources are available for food in everyday situations as well as before, during, and after emergencies and disasters. These resources are for individuals, households, governments, tribes, institutions, communities, and community-based and feeding organizations.

Food Assistance and Food System Resources | Nutrition | CDC

Feeding America

Feeding America is the largest charity working to end hunger in the United States. Partnering with food banks, food pantries, and local food programs to bring food to people facing hunger.Feeding American is a 501(c)(3) non-profit recognized by the IRS.

Food Access | Feeding America

800-771-2303

American Diabetes Association (ADA)

State Insulin Copay Caps is a regularly updated list by the ADA for states who have capped insulin copayments for state-regulated commercial health insurance plans and where its found in state law. This includes a state advocacy link where you can learn how to advocate in your state for affordable insulin.

State Insulin Copay Caps | ADA

Pan Foundation 

Pan Foundation is an independent, national 501(c)(3) organization whose mission is to accelerate access to affordable, equitable healthcare through financial assistance, advocacy, and education.

How to find financial assistance for your prescription medications – PAN Foundation

– To speak with a live interpreter, call 1-866-316-7263 Monday through Friday, 9 AM to 5:30 PM EST.

– At the first recorded menu, select the option for another language. You will be connected to an interpreter who will help with your call.

– To use the national TTY-based Telecommunications Relay Service (TRS), call 711 and then ask the communication assistant to dial 1-866-316-7263. The contact center is open Monday through Friday, 9 AM to 5:30 PM EST.

– For more contact options, please visit the Contact us page.

Health Resources & Servics Administration (HRSA)

HRSA programs provide health care to people who are geographically isolated and economically or medically vulnerable. HRSA-funded health centers are in all U.S. states, territories, and the District of Columbia. You can find them in cities, rural areas, and everywhere in between.

Find a Health Center

NeedyMeds

NeedyMeds is a registered 501©(3) national non-profit that connects people to programs that will help them afford their medications and other healthcare costs.vbbbvb.

NeedyMeds

Toll free helpline 1-800-503-6897 Monday to Friday from 9 AM to 5 PM (EST)

American Psychological Association (APA)

The APA’s crisis hotline and resources page has a lists of specialists that are available for confidential telephone counseling on a national and state level. Follow the link below to access this free resource.

APA – Crisis Hotlines

988 Lifeline

The 988 Suicide & Crisis Lifeline provides free and confidential emotional support to people in suicidal crisis or emotional distress 24 hours a day, 7 days a week across the United States and its territories. The 988 Lifeline is comprise of a national network of over 200 local crisis centers, combining local care and resources with national standards and best practices. Follow the link below to access this free resource.

988 Lifeline

Crisis Text Line

Crisis Text Line provides free, 24/7, high-quality text-based mental health support and crisis intervention by empowering a community of trained volunteers to support people in their moments of need. The resources below can help you learn more and get connected.

Crisis Text Line | Text HOME to 741741 Free, 24/7 Mental Health Support
Text “hello” to 741741

Patient Advocate Foundation

Patient Advocate Foundation’s Co-Pay Relief program exists to help reduce the financial distress patients, and their families face when paying for treatment. This national 501(c)(3) non-profit organization believes that no patient should go without life changing medication because they cannot afford them.

Co-Pay Relief – Patient Advocate Foundation | Co-Pay Relief

1-866-512-3861 (toll free)

Health Resources & Services Administration (HRSA)

Hill-Burton Free and Reduced-Cost Health Care

You are eligible to apply for Hill-Burton free care if your income is at or below the current Federal Poverty Guidelines. Facilities may require you to provide documentation that verified your eligibility, such as proof of income. Some facilities costs are covered, not your private doctors’ bills

Hill-Burton Free and Reduced-Cost Health Care | HRSA

Social Security Administration

Who can get Disability

You may be eligible for Disability if you have:

– A disability or blindness, and

– Enough work history

Who can get Disability | SSA