We will always tell you how your data may be used. You can choose not to share certain information. The study’s progress and information will be posted on the SPeCTRuM public website. We will share the SPeCTRuM data with other CF researchers in a database called CEDaR-CF. Only researchers who have permission will have access to that data. The study data shared will not contain personal information, such as names or birthdates.
All people who are eligible can participate in this study. You do not need health insurance to participate in this study.
A group of people with cystic fibrosis (CF), family members, and researchers work together as a team. CF community members share their experiences and feedback to improve the study. They will also help us share with the community what we learn from the study.
We need data from a group of people with different experiences and backgrounds. This will help us better understand the health issues caused by cystic fibrosis-related diabetes in teens and adults. This diversity can lead to changes that help everyone.
The SPeCTRuM-CF study website will be updated periodically with study progress and findings. We will also share study findings at community events.
We will store your data in a safe way that meets trusted safety standards.